Articles, Newsletters, Podcasts, and Video

New Program for Workers with Disabilities in Pennsylvania

By Philip Pauli / 2021-08-31
Posted in

Pennsylvania state flagHarrisburg, PA, August 31 – Pennsylvanians with disabilities who want to earn an income and become independent have new options for doing so, thanks to a

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Moving From Survival

By Alice Wong / 2021-07-25
Posted in

Moving From Survival

 

Sandy Ho

 

Editor’s note: This op-ed by the author was recently rejected by The New York Times’ (NYT) opinion section. In the midst of the COVID-19 pandemic it is critically important to center disabled people in policy conversations about community living and care as infrastructure. A recent collection of letters to the editor from NYT about the Better Care Better Jobs Act was extraordinarily inadequate. Enjoy!

 

I knew adhering

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Disability, Death & the Fight for Justice

By Alice Wong / 2021-06-08
Posted in

Disability, Death & the Fight for Justice Disability Justice in Canada amidst a time of pandemic  Megan Linton

 

Content notes: genocide, systemic ableism, medical aid in dying, eugenics, institutionalization, bodily autonomy, abuse, neglect, suffering

 

COVID-19 has brought with it devastating ableist violence– eugenicist triage protocols, mass death in residential institutions and the normalization of disabled death. In Canada, this ableist violence has only been complemented by legislative attacks on the right for

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ASAN, 35 Advocacy Organizations File Amicus Brief Supporting Civil Rights Laws

By Noor Pervez / 2021-05-19
Posted in

View this statement as a PDF here.

Today, the Autistic Self Advocacy Network, ACLU, and thirty-four other advocacy organizations filed an amicus brief encouraging

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Disability Tax (#DisabilityTax) (#NoDisabilityTax)

By Steve / 2021-04-30
Posted in , ,

The extra financial costs that people with disabilities incur because of our society’s construction of disability (see also social model of disability).

Our objective is to eliminate these financial penalties through changes to policies.

These costs include:

  • Asset limits for disabled individuals to qualify for disability services and benefits.
  • Income limits for disabled individuals to qualify for disability services and benefits.
  • Co-pays for disability services
  • Subminimum wages
  • Inadequate salaries and supports for both professional and family caregivers
  • Under-funding of disability programs including education, housing, etc.
  • Under-reimbursement for disability services making them noncompetitive in the marketplace.
  • Under-insurance for vision aids (glasses) and hearing aids

Disability services and benefits need to move to a universal insurance program.

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Ep 94: Healthcare Rationing

By Alice Wong / 2021-01-10
Posted in

 

It’s been over eleven months since the pandemic emerged in the United States and things are worse than ever. Hospitals across the country have reached full capacity and utilizing crisis standards of care, guidelines used when there is a shortage of resources and care.

Today’s episode is about healthcare allocation in the time of COVID with Britney Wilson, a civil rights attorney with the National Center for Law and Economic Justice. This center, along with three other disability rights organizations, filed a class action complaint in October 2020 against the State of New York.  The lawsuit challenges the New York State Ventilator Allocation Guidelines as discriminatory. The Guidelines allow hospitals to reallocate ventilators from people who use them in the community. Britney will talk about her role in the case and how the case came about, how these existing guidelines are ableist and harm disabled people, and the goals are from the lawsuit. Please note we talked in November 2020 and I included a short update at the end of the episode.

Transcript

[Google doc]     [PDF]

Related Links

 

“NCLEJ Files Lawsuit to Protect Personal Ventilator Users,” October 8, 2020.

Class action complaint, Civil Case No: 1:20-cv-4819, October 7, 2020.

“Lawsuit Filed Challenges New York State Department of Health Guidelines Allowing the Reallocation of Personal Ventilators,” October 9, 2020, National Center for Law and Economic Justice.

“Disability Rights Activists Sue Cuomo over Ventilator Discrimination,” October 9, 2020, Wesley J. Smith, National Review.

“What the Chaos in Hospitals Is Doing to Doctors,”  January/February 2021, Jordan Kisner.

“One Man’s COVID-19 Death Raises The Worst Fears Of Many People With Disabilities,” July 31, 2020, Joseph Shapiro, NPR.

“As Hospitals Fear Being Overwhelmed By COVID-19, Do The Disabled Get The Same Access?” December 14, 2020, Joseph Shapiro, NPR.

Ep 81: Bioethics with Joe Stramondo, July 20, 2020, Disability Visibility podcast.

Ep 50: Disabled Lawyers with Hamza Jaka and Britney Wilson, May 6, 2019, Disability Visibility podcast.

“I’m disabled and need a ventilator to live. Am I expendable during this pandemic?” April 4, 2020, Alice Wong, Vox.

“I will not apologize for my needs,” March 27, 2020, Off-Kilter podcast.

National Center for Law and Economic Justice

Disability Rights New York 

NMD United

Not Dead Yet

 

About

Britney Wilson, Black woman with curly natural, black hair and glasses in a blue chambray suit and white and blue polka dot top standing on crutches in an office.
Britney Wilson, Black woman with curly natural, black hair and glasses in a blue chambray suit and white and blue polka dot top standing on crutches in an office.

 

Civil rights attorney Britney Wilson is a staff attorney at the National Center for Law and Economic Justice in New York.

Twitter: @labelleverite

 

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Credits

Cheryl Green, Audio Producer and Text Transcript

Alice Wong, Writer, Audio Producer, Host

Lateef McLeod, Introduction

Mike Mort, Artwork

Theme Music (used with permission of artist)

Song: “Dance Off”

Artist: Wheelchair Sports Camp

Music

Retro Metro” by Ketsa. (Source: FreeMusicArchive.org. licensed under a Attribution-NonCommercial-NoDerivatives 4.0 International License.)

“Smooth Lovin” by Kevin MacLeod. Link: https://incompetech.filmmusic.io/song/4379-smooth-lovinLicense: http://creativecommons.org/licenses/by/4.0/

Sounds

“VOCODER countdown” by Jack_Master. This work is licensed under the Creative Commons 0 License.

8 Bit Beeping Computer Sounds” by sheepfilms. This work is licensed under the Creative Commons 0 License.

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