Articles, Newsletters, Podcasts, and Video

Long-term Efficacy of Treatments Monitored in Japanese Study

By Margarida Maia PhD / 2023-01-27
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Researchers in Japan are conducting a study to better understand the natural history of spinal muscular atrophy (SMA) and how well disease-modifying therapies work in

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City Celebrates Disability Activists After Fighting Lawsuit and Losing

By Mia Ocean / 2023-01-26
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Springfield, U.S. — After a multi-year court battle, the city of Springfield is thrilled to celebrate its victorious opponents, the disabled activists who successfully compelled it to implement decades-old accessibility legislation.

City council member Leo Dedick said, “We could not be prouder of our disability activists. We applaud their important, necessary and long-overdue efforts.”

The city’s ADA coordinator, Jimmy Azhat, shared his takeaways from the costly and prolonged battle against the disabled: “Turns out there are ratios for physical accessibility, requirements for technology, processes for accommodations — I mean the list goes on and on. Consider my mind officially blown.”

Dedick said the city would host an event to commemorate the partnership with the disabled community and the city’s compulsory commitment to accessibility. He said, “We will use the settlement budget, first and foremost, to celebrate these hometown heroes. We will have a bounce house, food trucks, live music on the lawn, everything you need to celebrate these giants of the disabled community.”

The activists, however, were concerned nothing would change if they stopped doing all the work for free. Azhat was unfazed by their concerns and said, “We will create an oversight board composed of volunteer disabled activists to keep this gravy train going. Oh, and this gravy train has an accessible platform.”

Despite what can only be described as egregious and embarrassing ADA violations, Dedick viewed the public fight and ultimate loss in a positive light. He concluded, “It’s never too late to be forced to do the right thing.”

The post City Celebrates Disability Activists After Fighting Lawsuit and Losing appeared first on The Squeaky Wheel.

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Bromley Experts by Experience – Senior level paid work opportunity

By Bob / 2023-01-26
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Bromley Experts by Experience Senior level paid work opportunity Deputy CEO Salary £35,000 pro rata 17.5 hours per week We are: A grassroots Disabled Charity

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Photo ID needed to vote – a further loss of our democratic rights

By Bob / 2023-01-26
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[from Disability Labour] From 4 May 2023, voters in England will need to show photo ID to vote at polling stations in some elections. This

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Disability News Service 26th January

By Bob / 2023-01-26
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Claimant deaths still linked to systemic flaws in benefits system, DWP document shows Scores of deaths of claimants in the last three years have been

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Survey on what you want to know about protest rights

By Bob / 2023-01-25
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Law for Life and DPAC are working together to run a campaign to support protest rights, and to create clear and accessible public information for

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Teen with Rare SMA Form Named MDA National Ambassador for 2023

By Patricia Inacio PhD / 2023-01-25
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Leah Zelaya, a 15-year-old with a rare form of spinal muscular atrophy (SMA), was chosen by the Muscular Dystrophy Association (MDA) to be its 2023 MDA

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No Unwanted Immune Responses Found for SMA Children on Spinraza

By Steve Bryson PhD / 2023-01-23
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Spinraza (nusinersen) treatment is safe in children with spinal muscular atrophy (SMA) and does not cause unwanted immune responses, a study confirmed.

The study, involving

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Diagnosis Through Newborn Screening Yields Better Outcomes

By Marisa Wexler MS / 2023-01-20
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Newborn screening for spinal muscular atrophy (SMA), coupled with early access to disease-modifying therapies, can improve the likelihood that children with the disease will be

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Vigil for Jodey – 31st January outside Royal Courts of Justice

By Bob / 2023-01-19
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Vigil for Jodey – 31st January outside Royal Courts of Justice DPAC will be in solidarity with Joy Dove, mother of Jodey Whiting, for a

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