Articles, Newsletters, Podcasts, and Video

Care During COVID: Photo Essay on Interdependence

By Alice Wong / 2022-02-08
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Care During COVID: Photo Essay on Interdependence

 

Marley Molkentin and Kennedy Healy 

 

Note from the authors: The below photos were taken in Winter and Spring of 2021 in Chicago, Illinois. Our conversation was recorded and edited for length and clarity in January 2022. The lack of awareness and media representation of formalized in-home care during and before the pandemic led us to create this project. We share it in the context of a

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Hybrid Access Now: Statement by UCLA Student Coalitions

By Alice Wong / 2022-02-06
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<img data-attachment-id="482813" data-permalink="https://disabilityvisibilityproject.com/2022/02/06/hybrid-access-now-statement-by-ucla-student-coalitions/unnamed-17/" data-orig-file="https://i0.wp.com/disabilityvisibilityproject.com/wp-content/uploads/2022/02/unnamed.jpg?fit=1080%2C1080&ssl=1" data-orig-size="1080,1080" data-comments-opened="1" data-image-meta="{"aperture":"0","credit":"","camera":"","caption":"","created_timestamp":"0","copyright":"","focal_length":"0","iso":"0","shutter_speed":"0","title":"","orientation":"0"}" data-image-title="unnamed" data-image-description="" data-image-caption="<p>“Hybrid Access Now!” in all-caps, black lettering. Below, there is the DSU logo (consists of a circular design with multiple disability markers, with “UCLA Disabled Student Union” surrounding the circle), the Undergraduate Students Association Council logo (consists of a seal that depicts Royce Hall, a sunset, and the California state surrounded by a banner that reads “Seal of the associated students, University of California,

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Abolish Long-Term Care: Nationalize Home Care in Canada

By Alice Wong / 2022-02-02
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Abolish Long-Term Care: Nationalize Home Care in Canada

 

Megan Linton and Sarah Jama

 

Graphic with a black background that reads “Abolish Long-Term Care” in white and yellow capitalized lettersGraphic with a black background

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Year of the Tiger: Upcoming memoir by Alice Wong

By Alice Wong / 2022-02-01
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Happy Lunar New Year, y’all! Roaring your way September 6, 2022: my debut memoir, Year of the Tiger: An Activist’s Life, is something I worked on for the last year and a half. This is my second book to come out in the middle of a pandemic which is just wild. If you have the means, please pre-order it and support your independent bookseller. The audiobook will be available for pre-order in a few months. 

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Disabled Deaths Are Not Your “Encouraging News”

By Alice Wong / 2022-01-26
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Disabled Deaths Are Not Your “Encouraging News”: Resisting The Cruel Eugenics of Comorbidity Rhetoric

 

Adam Hubrig

 

“Comorbidities” is a weaselly, cruel, violent word.

This word, this concept, of comorbidities, keeps surfacing in even my most mundane conversations with colleagues, friends, and family. Conversations that are mostly happening on the phone, Zoom, or through messaging because I need to be safe. Because I’m one of these immunocompromised people in the “four or more” comorbidities

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Update on Philips CPAP, BiPAP, and Ventilator Recall

By Alice Wong / 2022-01-17
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Note: In the summer of 2021, Philips Respironics issued a recall notification of a number of their CPAP, BiPap, and ventilators in the United States. A group of disabled people impacted by the recall organized and sent an open letter to the Head of Quality and Regulator at Philips Respironics USA on August 25, 2021. Below is a summary of a report by the Food and Drug Administration prepared by Ivana Berlin, Student Advocate, Civil

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High-Risk Pandemic Stories: A Syllabus

By Alice Wong / 2022-01-09
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Since March 2020 I have been collecting strands of disabled wisdom about the pandemic and trying to gather, weave, and share them. Disabled, fat, older, poor, immunocompromised, and chronically ill folks have been oracles well before this global public health disaster and continue to this day as institutions and leaders treat marginalized communities as disposable. 

With the Disability Visibility Project I feel a keen urgency to publish as many pieces about the pandemic because our

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DVP: 2021 Year in Review

By Alice Wong / 2022-01-09
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Happy New Year! Better late than never, am I right? 2021 was SOME year. Too many expletives cannot adequately express my frustration and concern right now. I hope you are finding joy and comfort however and whenever you can. Below are some personal and professional highlights as the Disability Visibility Project continues to tell stories and amplify disability culture. 

May we all manifest everything we want this year and move beyond survival (although that is

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Reading Storms, Embracing Life: A Remembrance of Neil Marcus

By Alice Wong / 2022-01-09
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Reading Storms, Embracing Life: A Remembrance of Neil Marcus

 

Steven E. Brown

 

“I’m a human bridge in a moment of time, spanning as far and as relevant as my

thoughts will carry me.”

Neil Marcus to Esther Ehrlich, 2004

 

One late night last November, my wife, Lillian Gonzales Brown, and I, were stunned to learn of Neil Marcus’s death. Neil (Jan. 3, 1954-Nov. 17, 2021) was a friend, co-conspirator, and joy to

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Why We Need to Stop Making Movies about Helen Keller

By Alice Wong / 2021-11-15
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Helen Keller’s Shadow: Why We Need to Stop Making Movies about Helen Keller

 

Cristina Hartmann

 

I had my first run-in with Helen Keller when I was 11. My mother had told me that I was losing my sight and would become DeafBlind someday. My response was nerdy to the extreme: I went to the library and borrowed the thickest and densest biography on Helen Keller. She was the only DeafBlind person I knew,

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