Articles, Newsletters, Podcasts, and Video

A Lesson in Hospital Etiquette: Let’s Forgive Others, Not Judge Them

By Ari Anderson / 2022-05-19
Posted in

Here comes the latest adventure in the saga to remove my kidney stones.

Spoiler alert: I came close to leaping over the hurdle of getting

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Rediscovering My Love of Lego Star Wars

By Brianna Albers / 2022-05-16
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In my mind, Luke Skywalker was in love with me.

For context: I was never much of a Lego girl. But I was a “Star

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How Someone Handles My Hands Makes a Difference

By Halsey Blocher / 2022-05-13
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My mom and I enjoy treating ourselves to a relaxing afternoon of mother-daughter bonding at the nail salon from time to time. We don’t have

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Overcoming Roadblocks to Chase My Dreams With SMA

By Alyssa Silva / 2022-05-13
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For most of my teenage and early adult years, I had big dreams of working in fashion. As a creative person, the behind-the-scenes work always

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Adios, April! Hello, May(hem)!

By Helen Baldwin / 2022-05-11
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April brought with it more than showers in the water department.

Our son Matthew and his family visited our daughter and son-in-law, Katie and Paul,

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There’s No Success Without Rest

By Sherry Toh / 2022-05-11
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As you get older, proper rest tends to become an appointment you have to schedule. It’s something you have an abundance of when you’re an

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Life Advice From My Hippie SMA Friend

By Kevin Schaefer / 2022-05-10
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I correspond with a number of friends and acquaintances in the SMA community on a regular basis, but mostly through social media and work. However,

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Healthcare Is Rarely a Walk in the Park

By Brianna Albers / 2022-05-09
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When it comes to healthcare, I’ve had remarkably good luck.

There are, of course, bad apples. See, for example, the gastroenterologist who rambled about “The

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Within 3 Years, This Column Has Grown and Changed

By Halsey Blocher / 2022-04-29
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Somehow, it’s already been three years since I began sharing my story with you in this column. It’s been a beautiful, heartfelt adventure that I’ve thoroughly

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Adapting to My NJ Feeding Tube

By Alyssa Silva / 2022-04-29
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Lying in a hospital bed, I watched as a nurse demonstrated how to use a nasojejunal tube (NJ tube) to my parents. I could tell

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