Articles, Newsletters, Podcasts, and Video

What is ADHD? Q&A (Episode 13)

By DPSS Team / 2021-12-06
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As part of the DPSS training week in March 2021, Aimee-Elizabeth Parsons and Trevor Friesen did a session entitled “What is ADHD?”. That session was based on Episode 3, which you can watch here. In this episode, Aimee and Trevor tackle some of the questions that they were asked during and after their session.

Some of the topics Aimee and Trevor discuss are:

  • Medication: how they work, benefits, side effects, and more
  • Strategies to help with “explosive” emotions
  • Melatonin and other strategies to help with sleep
  • How to talk to your child about their diagnosis

Useful Links

Kids out of school getting you down? Is there chaos and a lack of schedule?

Social Stories (Part 1, Part 2, Part 3)

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Young Gifted Black & Disabled – Say it Loud with Lateef McLeod

By T.Reid / 2021-11-24
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Lateef McLeod (pronounced McCloud) is a writer, poet, performance artist and currently pursuing his PhD. He’s a user of AAC technology or Augmentative and Alternative Communication. This technology enables those who are nonverbal to communicate in a variety of ways. In today’s episode I get to speak with Lateef and discuss AAC,Synthetic Speech, his experience […]

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Language Development & Disorders: Q&A (Episode 12)

By DPSS Team / 2021-11-22
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This is Part 3 of our series on Language Disorders and Development. In this episode, Cynthia and Dana answer some questions that were asked after their session on Language Development and Disorders in March 2021. You can watch the first two parts of this series here:

Episode 6: How Language Develops

Episode 7: How to Stimulate Early Language Skills

Some of the questions addressed in this episode are:

  • The difference between a delay and a disorder
  • The difference between language and communication
  • Helping students with language problems
  • When parents understand a child but others don’t
  • Why to bother with a diagnosis if I think my child will grow out of it
  • Heredity vs lack of stimulation
  • What to do when strategies aren’t working
  • Helping students who speak multiple languages

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Autism Spectrum Disorder: Q&A (Episode 11)

By DPSS Team / 2021-11-03
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During the DPSS training week in March 2021, Cynthia and Bethany did a session on autism spectrum disorder. You can watch the videos from those sessions here: Let’s Talk About Autism Part 1 and Let’s Talk About Autism Part 2. There were so many good questions at the end of the session, that they couldn’t all be answered.

In this episode, Bethany and Cynthia take the time to answer some of the questions they couldn’t get to then.

Some of the questions and topics covered in this episode are:

  • Is autism linked to drug use?
  • Is having an older parent a cause of autism?
  • Is autism the same as Asperger’s syndrome?
  • How early can autism be detected?
  • Encouraging hesitant parents to seek diagnosis for their child.
  • Autism spectrum disorder and service animals.
  • Helping families use visual schedules.
  • Educating students about autism.
  • What are some autistic people picky eaters?

Useful Information

MIRA: https://www.mira.ca/en/programs/guide-dog-kids-asd

Autism Spectrum Disorder Fact Sheet (PDF)

The post Autism Spectrum Disorder: Q&A (Episode 11) appeared first on Disability Programs Specialized Services.

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Muscular Dystrophy Association Launches Podcast Hosted by SMA Advocate

By Hawken miller / 2021-08-10
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Today, the Muscular Dystrophy Association (MDA) is officially launching its MDA Quest Podcast, which will feature conversations with neuromuscular disease patients, doctors, family, caregivers, and

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A Community Life For All: Q&A (Episode 9)

By DPSS Team / 2021-07-09
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During the DPSS team’s training week in March 2021, we received a lot of questions at the end of each session. While we were able to answer some of the questions, we couldn’t get to them all. In this episode, Sophie-Anne and Bethany answer some of the questions that were asked during the session “Inclusion: A Community Life For All”, which you can hear or watch by checking out Episode 8 of the DPSS Podcast.

Some of the questions they address are:

  1. What can be done about existing inaccessible homes on territory?
  2. If the costs are similar, why aren’t buildings built in an inaccessible fashion?
  3. How can we include an Autistic adult in a community that is not built with them in mind?
  4. How can we get recommendations for adaptations?
  5. What can be done to help adults and elders get out of their comfort zone and be more willing to participate in community events?

Download our inclusion fact sheet (PDF)

The post A Community Life For All: Q&A (Episode 9) appeared first on Disability Programs Specialized Services.

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Inclusion: A Community Life For All (Episode 8)

By Bethany Hartropp Occupational Therapist / 2021-05-31
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In this podcast episode, Bethany Hartropp and Sophie-Anne Scherrer, both Occupational Therapists working with the Disability Programs Specialized Services at the CBHSSJB, talk about inclusion and accessibility. We all have different abilities, sometimes because of age, health conditions or injury. This podcast talks about strategies for staying active and having roles in our family and communities when we or our loved one need extra help to do this.

Download our Inclusion Fact Sheet

References

Bruijn, P., Regeer, B., Cornielje, H., Wolting, R., van Veen, S., & Maharaj, N. (2012). Count me in: Include people with disabilities in development projects – A practical guide for organisations in North and South. Veenendaal: LIGHT FOR THE WORLD. https://www.light-for-the-world.org/sites/lfdw_org/files/download_files/count-me-in-include-people-with-disabilities-in-development-projects.pdf

Centers for Disease Control and Prevention (2020). Disability Inclusion. https://www.cdc.gov/ncbddd/disabilityandhealth/disability-inclusion.html

Goering, S. (2015). Rethinking disability: the social model of disability and chronic disease. Current reviews in musculoskeletal medicine8(2), 134-138.

HCMA Architecture and Design. (2020). Rick Hansen Foundation Accessibility Certification Cost Comparison Feasibility Study. https://www.rickhansen.com/sites/default/files/downloads/20200115-rhfac-final-report-full-v3.pdf

Rohwerder, B. (2015). Disability inclusion: Topic guide. Birmingham, UK: GSDRC, University of Birmingham. https://gsdrc.org/topic-guides/disability-inclusion/barriers-to-disability-inclusion/

Townsend, E. A., & Polatajko, H. J. (2007). Enabling occupation II: advancing an occupational therapy vision for health, well-being & justice through occupation. Ottawa. ACE.

World Health Organization (2002). Towards a common language for Functioning, Disability and Health – ICF. https://web.archive.org/web/20181018004751/http://www.who.int/classifications/icf/en/

World Health Organization (2011). World Report on Disability. https://documentcloud.adobe.com/link/review?uri=urn:aaid:scds:US:36324d3d-b7b9-480e-b06d-cfda0f1e3f5f#pageNum=1

Image

Salvation Army (2020). Be Bold: From Equality to Equity on International Day of the Girl. https://www.salvationarmy.org.nz/BeBold

Resources on accessibility and inclusion

In Eeyou Istchee

CBHSSJB staff can reach out to Disability Programs Specialized Services for support in increasing local accessibility and inclusion.

To place funding request for a project for people under 18 years old in your community, contact the DPSS Jordan’s Principle team.

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A Season for Honoring Ourselves

By T.Reid / 2021-05-26
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To conclude this first season of the podcast which fully focused on those adjusting to blindness, I share a few thoughts from guests featured so far in 2021. Some of these comments were not included in the original episodes. This episode also includes some of what’s in store for the next season beginning in July. […]

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Qudsiya Naqui – Becoming an A+ Blind Person

By T.Reid / 2021-05-12
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The vision loss experience is different for everyone. Our responses to circumstances determines our outlook. Then again, our outlook on life can signal how we handle the tough situations. Qudsiya Naqui, founder and host of the podcast Down to the Struts, shares several transformative moments throughout her blindness journey. She discusses going from someone who […]

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Ep 100: Podcasting

By Alice Wong / 2021-04-03
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Today’s subject is this podcast because it’s episode 100!! Whether this is the first time you’re listening or if you’re a longtime listener, this podcast is co-audio produced by three people and myself: Sarika Mehta, Geraldine Ah-Sue, and Cheryl Green. I’m proud to work with all three of them since the podcast started in 2017. You’ll hear us talk about the lack of disabled voices in radio or podcasts, our collaborative process, and the future of the podcast. And this is a supersized episode! After the conversation, you’ll hear some feedback from podcast listeners. In this post you can also find more such as a downloadable list of all 100 podcast episodes you can share as a resource (coming soon) and another document with responses by students from Mid-Peninsula High School in San Mateo, California (see below).  

And now for a very important update. Friends, this is the last episode of the Disability Visibility podcast. I’ll talk about how I came to this decision in the conversation with Geraldine, Sarika, and Cheryl. I hope you will continue to subscribe because I may still produce other audio stories in the future, just not regular podcast episodes. It has been an absolute joy to create and collaborate with so many awesome people.

In addition to Sarika, Cheryl, and Geraldine, I want to thank Mike Mort for creating the logo, Wheelchair Sports Camp for allowing me to use 2 of their songs as the theme music, and Lateef McLeod for the introduction. I also want to thank the 100+ guests for sharing their wisdom and time and for trusting their story with me. And most importantly, I want to thank YOU. This is not the end, but the beginning of new adventures. Thank you for being in community with me. 

Transcript

[Google doc]     [PDF]

Related Links

Disability Visibility Podcast Resource Guide  [Google doc]    [PDF]

Reflections on Disability Visibility podcast by students from Mid-Peninsula High School students

Follow and check out these amazing disabled podcasters!

Down to the Struts podcast with Qudsiya Naqui

Contra* podcast with Aimi Hamraie

Power Not Pity podcast with Bri M.

Reid My Mind with Thomas Reid

No End In Sight podcast with Brianne Benness

Pigeonhole podcast with Cheryl Green

AAC  Town

About

Portrait photo of an Asian American woman looking directly in the camera with a slight half smile. She is wearing a light blue button-up shirt and a long earring on her right ear. She has a lip ring, dark eyes, and dark hair that is tied up with bangs that are cut in a diagonal line, slanting to her left. She is set against a silver background.
Portrait photo of an Asian American woman looking directly in the camera with a slight half smile. She is wearing a light blue button-up shirt and a long earring on her right ear. She has a lip ring, dark eyes, and dark hair that is tied up with bangs that are cut in a diagonal line, slanting to her left. She is set against a silver background.

Geraldine Ah-Sue is a cultural activist and independent radio producer primarily interested in stories shared by BIPOC communities about culture, community, and love. She has produced stories for outlets such as KALW’s newsmagazine show Crosscurrents and APEX Express on KPFA. She was the producer and host of the second season of the San Francisco Museum of Modern Art’s podcast Raw Material, which focused on the intersections between art, community and social justice. Currently, she is enjoying working on her independent creative project Playing with Food: The Place where Food Comes to Life, and loving on her inquisitive, song-filled toddling daughter.

Twitter: @geraldineah_sue

A white woman with olive skin and long, dark brown, curly hair stands outside by a red wall that vanishes behind her in the distance. A line of enormous running horses are painted in a mural on the wall in black and white, their manes blowing in the wind. Cheryl stands with her arms folded in front of her, forearms chiseled from too many years typing, staring off in the direction the horses are headed. She has a solemn crow tattooed on one arm and wears a black t-shirt with white text, "No More Spoons" and a row of knives and daggers.
A white woman with olive skin and long, dark brown, curly hair stands outside by a red wall that vanishes behind her in the distance. A line of enormous running horses are painted in a mural on the wall in black and white, their manes blowing in the wind. Cheryl stands with her arms folded in front of her, forearms chiseled from too many years typing, staring off in the direction the horses are headed. She has a solemn crow tattooed on one arm and wears a black t-shirt with white text, “No More Spoons” and a row of knives and daggers.

Cheryl Green, MFA, MS is a multi-media digital artist, captioner, audio describer, a 2017 AIR New Voices Scholar, 2020 DOC NYC Documentary New Leader, and Digital Operations Lead and a Member-Owner at New Day Films (through July, 2021). She brings her lived experience with multiple invisible disabilities to creating media that explores politically- and culturally-engaged stories from cross-disability communities. She reported and produced one episode for the Peabody-nominated Season 2 of 70 Million and has audio described and captioned many films for Cinema Touching Disability Film Festival and Superfest International Disability Film Festival. Her audio and written blog, transcribed podcast, and documentary films are at www.WhoAmIToStopIt.com

Twitter: @WhoAmIToStopIt

A brown woman with long, curly, black hair, stands smiling while playing a ukulele. She is visibly pregnant, wearing a dark purple dress. The background shows a green wall with small paintings of flowers hanging.
A brown woman with long, curly, black hair, stands smiling while playing a ukulele. She is visibly pregnant, wearing a dark purple dress. The background shows a green wall with small paintings of flowers hanging.

Sarika Mehta, originally from Chicago’s suburbia, loves things music, dance, and all that jazz. She’s been a producer with APA Compass radio collective, founded and hosted the podcast Intersections Radio, anchored the KBOO Evening News, and of course served as a producer for Alice Wong’s Disability Visibility Project Podcast. Currently she is the host and founder of Diaspora Blues Radio where she nerds out with her favorite artists. Her fascination with languages led her to the worlds of Sign Language Interpreting and journalism for the ears. She’s a busy mama with two little beautiful boys and she’s been known to make stuffed animals out of excellently patterned socks. Keep up at sarikadmehta.com

Twitter: @sarikadmehta

 

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DONATE to the Disability Visibility Project®

 

Credits

Alice Wong, Writer, Audio Producer, Host

Cheryl Green, Text Transcript

Lateef McLeod, Introduction

Mike Mort, Artwork

Theme Music (used with permission of artist)

Song: “Dance Off”

Song: “Hard Out Here for A Gimp”

Album: NO BIG DEAL

Artist: Wheelchair Sports Camp

Music

electro-pop 01 loop by frankum, November 24, 2013. This work is licensed under the Creative Commons 0 License.

 

Synth Pop Loop 01 by RokZRooM, March 21, 2021. This work is licensed under the Creative Commons 3.0 License.

Sounds

“VOCODER countdown” by Jack_Master. This work is licensed under the Creative Commons 0 License.

8 Bit Beeping Computer Sounds” by sheepfilms. This work is licensed under the Creative Commons 0 License.

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