Articles, Newsletters, Podcasts, and Video

Press Release from Leigh Day law firm:- Severely disabled benefits claimants win legal challenge over loss of income caused by move on to Universal Credit

By Bob / 2022-01-22
Posted in

[Press release from Leigh Day solicitors on Friday 21st January] Severely disabled benefits claimants win legal challenge over loss of income caused by move on

more

5 Things To Know Now About the RISE Act

By Grace Aiyedogbon / 2022-01-21
Posted in

Last year, members of Congress introduced the Respond, Innovate, Support, and Empower (RISE) Act which would reduce barriers and increase access to

more

Targeted NGS Seen as Best When Screening for SMA and Its Carriers

By Marta Figueiredo PhD / 2022-01-21
Posted in

Targeted next generation sequencing (NGS) — a powerful genetic method that can identify mutations in several genes simultaneously — is superior to two commonly used

more

Disability News Service 20th January

By Bob / 2022-01-20
Posted in

  Baby vouchers scheme ‘blackmails’ disabled parents onto universal credit A disabled mother-of-two has accused the government of “financial blackmail” and discriminating against claimants of

more

Do you use ScotRail? Help us and RMT oppose reductions in station staffing

By Bob / 2022-01-20
Posted in

[Text from Rail, Maritime and Transport Union(RMT)] You may be aware that last week ScotRail announced proposals to reduce ticket office opening hours at 117

more

Caregivers Need Information About Help With Future Care, Study Finds

By Steve Bryson PhD / 2022-01-20
Posted in

Caregivers of children with spinal muscular atrophy (SMA) said they need information about institutions that may benefit their child in the future, a questionnaire-based study

more

Sign up to be a Day of Mourning Vigil Site Coordinator

By Haley Outlaw / 2022-01-19
Posted in

Site coordinators are a vital part of the Disability Day of Mourning. Site coordinators secure space in their communities to hold a vigil, do

more

Comments for January 19th IACC Meeting

By Meredith Bartley / 2022-01-19
Posted in

These comments are available as a PDF here.

Thank you for the opportunity to submit written comments for the IACC’s public meeting on January

more

Comments for January 19th IACC Meeting

By Meredith Bartley / 2022-01-19
Posted in

These comments are available as a PDF here.

Thank you for the opportunity to submit written comments for the IACC’s public meeting on January

more

Report: Vitamin K Deficiency Caused Blood Clotting Problem in SMA Teen

By Steve Bryson PhD / 2022-01-19
Posted in

An adolescent male with spinal muscular atrophy (SMA) receiving tube feeding and antibiotics developed a problem with blood clotting due to a deficiency in vitamin

more