Articles, Newsletters, Podcasts, and Video

Update on Philips CPAP, BiPAP, and Ventilator Recall

By Alice Wong / 2022-01-17
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Note: In the summer of 2021, Philips Respironics issued a recall notification of a number of their CPAP, BiPap, and ventilators in the United States. A group of disabled people impacted by the recall organized and sent an open letter to the Head of Quality and Regulator at Philips Respironics USA on August 25, 2021. Below is a summary of a report by the Food and Drug Administration prepared by Ivana Berlin, Student Advocate, Civil

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High-Risk Pandemic Stories: A Syllabus

By Alice Wong / 2022-01-09
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Since March 2020 I have been collecting strands of disabled wisdom about the pandemic and trying to gather, weave, and share them. Disabled, fat, older, poor, immunocompromised, and chronically ill folks have been oracles well before this global public health disaster and continue to this day as institutions and leaders treat marginalized communities as disposable. 

With the Disability Visibility Project I feel a keen urgency to publish as many pieces about the pandemic because our

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DVP: 2021 Year in Review

By Alice Wong / 2022-01-09
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Happy New Year! Better late than never, am I right? 2021 was SOME year. Too many expletives cannot adequately express my frustration and concern right now. I hope you are finding joy and comfort however and whenever you can. Below are some personal and professional highlights as the Disability Visibility Project continues to tell stories and amplify disability culture. 

May we all manifest everything we want this year and move beyond survival (although that is

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Reading Storms, Embracing Life: A Remembrance of Neil Marcus

By Alice Wong / 2022-01-09
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Reading Storms, Embracing Life: A Remembrance of Neil Marcus

 

Steven E. Brown

 

“I’m a human bridge in a moment of time, spanning as far and as relevant as my

thoughts will carry me.”

Neil Marcus to Esther Ehrlich, 2004

 

One late night last November, my wife, Lillian Gonzales Brown, and I, were stunned to learn of Neil Marcus’s death. Neil (Jan. 3, 1954-Nov. 17, 2021) was a friend, co-conspirator, and joy to

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Why We Need to Stop Making Movies about Helen Keller

By Alice Wong / 2021-11-15
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Helen Keller’s Shadow: Why We Need to Stop Making Movies about Helen Keller

 

Cristina Hartmann

 

I had my first run-in with Helen Keller when I was 11. My mother had told me that I was losing my sight and would become DeafBlind someday. My response was nerdy to the extreme: I went to the library and borrowed the thickest and densest biography on Helen Keller. She was the only DeafBlind person I knew,

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Reflecting on My Experiences as a Homeless Youth with Disabilities

By Alice Wong / 2021-11-14
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Youth Homelessness, Disability and Institutionalization: Reflecting on My Experiences as a Homeless Youth with Disabilities this National Runaway Prevention Month 

 

Rachel Litchman

 

Content notes: sexual abuse, violence, trauma, institutionalization, forced treatment, self harm 

 

On any given night, approximately 41,000 unaccompanied youth between the ages of 13 and 25 navigate homelessness alone. These youth make up a significant fraction of the 4.2 million young people who have no permanent housing. 79% of these

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How CBT Harmed Me: The Interview That the New York Times Erased

By Alice Wong / 2021-11-11
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How CBT Harmed Me: The Interview That the New York Times Erased Alana Saltz

 

In August, I was contacted by a reporter writing an article for the New York Times on cognitive behavioral therapy (CBT) as a treatment for chronic pain. They had seen a Twitter thread I wrote that criticized CBT, calling out the harm it can do to chronically ill and disabled people like me, especially when it’s used to treat chronic

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Interview with Maya-Camille Broussard

By Alice Wong / 2021-11-02
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I love pies and any kind of baked goods. Below is my interview with Maya-Camille Broussard, the founder and creator of Justice of the Pies, a bakery based in Chicago. From their website:

Formed as an L3C, Justice of the Pies considers itself to be a social mission in a culinary art form. Our goal is to positively impact the lives of those who work with us.

Eat some pie (or any goodie of your

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Disability Visibility anthology for young readers

By Alice Wong / 2021-10-26
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I’m delighted to share my new anthology adapted for young readers, DISABILITY VISIBILITY: 17 First-Person Stories for Today, available now from Delacorte Books. This book has 17 edited pieces from my 2020 anthology  plus a new introduction that you can read in its entirety below. For more, check out this review from Kirkus Reviews and this interview from We Need Diverse Books. Enjoy! 

 

 

<img data-attachment-id="481140" data-permalink="https://disabilityvisibilityproject.com/2021/10/26/disability-visibility-anthology-for-young-readers/ya-for-twitter/" data-orig-file="https://i2.wp.com/disabilityvisibilityproject.com/wp-content/uploads/2021/10/YA-for-Twitter.png?fit=1600%2C900&ssl=1" data-orig-size="1600,900" data-comments-opened="1" data-image-meta="{"aperture":"0","credit":"","camera":"","caption":"","created_timestamp":"0","copyright":"","focal_length":"0","iso":"0","shutter_speed":"0","title":"","orientation":"0"}" data-image-title="YA for Twitter"

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Q&A with Elsa Sjunneson

By Alice Wong / 2021-10-24
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<img data-attachment-id="480445" data-permalink="https://disabilityvisibilityproject.com/2021/10/24/qa-with-elsa-sjunneson/beingseen/" data-orig-file="https://i1.wp.com/disabilityvisibilityproject.com/wp-content/uploads/2021/09/BeingSeen.jpg?fit=1000%2C1510&ssl=1" data-orig-size="1000,1510" data-comments-opened="1" data-image-meta="{"aperture":"0","credit":"","camera":"","caption":"","created_timestamp":"0","copyright":"","focal_length":"0","iso":"0","shutter_speed":"0","title":"","orientation":"0"}" data-image-title="Being+Seen" data-image-description="" data-image-caption="<p>Cover image of Being Seen: One Deafblind Woman’s Fight to End Ableism by Elsa Sjunneson. From the letter “I” in “BEING,” the color of Elsa’s cataract refracts in a rainbow-colored prismatic effect over a dark background. “Deafblind” is emphasized with light.</p> " data-medium-file="https://i1.wp.com/disabilityvisibilityproject.com/wp-content/uploads/2021/09/BeingSeen.jpg?fit=199%2C300&ssl=1" data-large-file="https://i1.wp.com/disabilityvisibilityproject.com/wp-content/uploads/2021/09/BeingSeen.jpg?fit=678%2C1024&ssl=1" loading="lazy" class="wp-image-480445 size-large" src="https://i1.wp.com/disabilityvisibilityproject.com/wp-content/uploads/2021/09/BeingSeen.jpg?resize=678%2C1024&ssl=1" alt="Cover image of Being Seen: One Deafblind Woman’s Fight to End Ableism by Elsa Sjunneson. From the letter

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