Articles, Newsletters, Podcasts, and Video

High-Risk Vaccine Hesitancy

By Alice Wong / 2021-09-07
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High-Risk Vaccine Hesitancy  Brianne Benness

At this time last year, I didn’t know what to do about the flu vaccine. We were already in the thick of the pandemic: grieving the disproportionate loss of disabled people in congregate care facilities, listening to friends and high-profile strangers express their relief that the only people dying from this virus were people with preexisting conditions, and watching as the devastation of long covid was met with the kind

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Letter from Disabled Ventilator Users on Philips Respironics Recall

By Alice Wong / 2021-09-01
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Below is an open letter from a number of disabled people in the US impacted by a recall of 13 ventilators, CPAPs and BiPaps manufactured by Philips Respironics including signatures by over two dozen organizations and groups. For more, check out the press release from the New York Law School and a collection of links and Tweets.

Take Action

If you are affected by the recall and want to sign on to this open

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Supercrips, Solidarity, and Crip Families in The Bad Batch

By Alice Wong / 2021-08-02
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Supercrips, Solidarity, and Crip Families in The Bad Batch Dr. Johnathan Flowers 

Content notes: eugenics, applied behavioral analysis, torture, genetic manipulation, ableist terminology 

Spoilers below for The Bad Batch season one. 

 

When I set out to write about The Bad Batch (an animated series on Disney+) and disability, I had in mind an essay that would make clear the ways in which The Bad Batch, as the latest addition to the Star Wars canon,

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Moving From Survival

By Alice Wong / 2021-07-25
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Moving From Survival

 

Sandy Ho

 

Editor’s note: This op-ed by the author was recently rejected by The New York Times’ (NYT) opinion section. In the midst of the COVID-19 pandemic it is critically important to center disabled people in policy conversations about community living and care as infrastructure. A recent collection of letters to the editor from NYT about the Better Care Better Jobs Act was extraordinarily inadequate. Enjoy!

 

I knew adhering

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Major Keys

By Alice Wong / 2021-07-25
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Major Keys

 

Britney Wilson

 

In my sophomore year of high school I was nominated to attend the National Young Leaders Conference (NYLC) in Washington, D.C. The four-day conference was designed to engage interested students in the mechanics of government, politics, and life on Capitol Hill. As a teenager, I’d decided that becoming an attorney was the most effective way to advocate for myself and others like me as a Black disabled woman. I

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Disabled Immigrants: Living on the Edge of Barbwire

By Alice Wong / 2021-07-25
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Disabled Immigrants: Living on the Edge of Barbwire Qudsiya Naqui

 

Content notes: ableist and sanist language, eugenics, suicide, medical neglect, suffering, abuse, violence, incarceration

 

I first became interested in the disabled immigrant experience through my work running legal services programs for unaccompanied immigrant children detained at the U.S. border from 2011-2018. My work often made me think of a poem by the great Mexican-American queer disabled writer, Gloria Anzaldua:

“1,950-mile-long open wound

dividing

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We Move Together

By Alice Wong / 2021-07-12
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We Move Together: Interview with Kelly Fritsch Megan Linton 

 

We Move Together is a joyful new children’s book about disability community and culture. In conversation with one of the books’ co-authors, Kelly Fritsch, we discuss COVID-19, children’s literature, and disability justice in Canada.

 

<img data-attachment-id="478244" data-permalink="https://disabilityvisibilityproject.com/2021/07/12/we-move-together/unnamed-1-1/" data-orig-file="https://i0.wp.com/disabilityvisibilityproject.com/wp-content/uploads/2021/07/unnamed-1-1.jpg?fit=253%2C240&ssl=1" data-orig-size="253,240" data-comments-opened="1" data-image-meta="{"aperture":"0","credit":"","camera":"","caption":"","created_timestamp":"0","copyright":"","focal_length":"0","iso":"0","shutter_speed":"0","title":"","orientation":"0"}" data-image-title="unnamed-1 (1)" data-image-description="" data-medium-file="https://i0.wp.com/disabilityvisibilityproject.com/wp-content/uploads/2021/07/unnamed-1-1.jpg?fit=253%2C240&ssl=1" data-large-file="https://i0.wp.com/disabilityvisibilityproject.com/wp-content/uploads/2021/07/unnamed-1-1.jpg?fit=253%2C240&ssl=1" loading="lazy" class="wp-image-478244 size-full" src="https://disabilitynewswire.net/blog/wp-content/uploads/2021/07/unnamed-1-1.jpg" alt="Illustration by Eduardo Trejos. Five pairs of legs appear against a bright orange background.

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Pride Feelings

By Alice Wong / 2021-07-06
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Pride Feelings J. Logan Smilges

 

By the time this essay goes live, the United States will have emerged from LGBTQ Pride Month into Disability Pride Month. Most years I find the transition between these months to be defined by an emotional chaos, one filled with feelings that I can never name because I’m just so tired. June is exhausting. As a queer and trans person, I try to be optimistic about LGBTQ Pride

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Reimagining the Autistic Mother Tongue

By Alice Wong / 2021-06-13
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Reimagining the Autistic Mother Tongue  Jane Shi

 

Content notes: child abandonment, abusive adoptive parents, anti-Asian violence and misogyny, mass shooting, ableist slurs and language, forced restraint of autistic people, ABA (applied behavioural analysis)

 

For most of my life, I attributed my needs and the fact that others frequently didn’t understand them to an inherent lack. 

I was bad at communicating. I was bad at chores. I was bad at being in groups. The

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Disability, Death & the Fight for Justice

By Alice Wong / 2021-06-08
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Disability, Death & the Fight for Justice Disability Justice in Canada amidst a time of pandemic  Megan Linton

 

Content notes: genocide, systemic ableism, medical aid in dying, eugenics, institutionalization, bodily autonomy, abuse, neglect, suffering

 

COVID-19 has brought with it devastating ableist violence– eugenicist triage protocols, mass death in residential institutions and the normalization of disabled death. In Canada, this ableist violence has only been complemented by legislative attacks on the right for

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