Articles, Newsletters, Podcasts, and Video

And Now Here We Are

By Alice Wong / 2021-03-08
Posted in

Disabled people all over the world are disproportionately impacted by the coronavirus pandemic. “And Now Here We Are” is a comic by Sam Schäfer about the experiences of disabled people in the UK. I first saw Sam Tweet this series on Twitter on February 20, 2021 and am so pleased to be able to publish a version of it here.

Content notes: ableism, austerity, grief, pain, death, dying, poverty, suffering, eugenics.

 

 

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Q&A with Ingrid Tischer

By Alice Wong / 2021-03-06
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Below is a conversation I had with my friend Ingrid Tischer on February 20, 2021. Ingrid is one of the first close friends I made when I moved to San Francisco over twenty years ago. So we go wayyyyyyy back!

Please note there will be discussions of hospitalization, end-of-life, dying and mortality, ableism, quality of life, discrimination, and mental health. Some parts have been condensed and edited for clarity.

Many thanks to Cheryl Green

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2/24 Statement Regarding State Policy on Vaccination of People with High-Risk Conditions

By Alice Wong / 2021-02-26
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Statement Regarding State Policy on Vaccination of People with High-Risk Conditions

We are very happy to see that the State of California shared a plan on February 12 to vaccinate people with disabilities/medical conditions and higher-weight people who are at high risk for COVID starting March 15. It is good to see this consideration of our communities.

However, we have grave concerns about the policy as it stands, and we urge immediate changes.

The list

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The King and Lies

By Alice Wong / 2021-02-14
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The King and Lies  Tinu Abayomi-Paul

 

The day you realize as a Black person, that your people were enslaved, and are still being oppressed, in order to provide the foundation of wealth in this country, is a hard one.

An echo of that pain reverberates in our hearts when our collective heroes die in a way we perceive as sudden, especially when we judge the grim reaper’s arrival as early as well.

Being

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Ep 94: Healthcare Rationing

By Alice Wong / 2021-01-10
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It’s been over eleven months since the pandemic emerged in the United States and things are worse than ever. Hospitals across the country have reached full capacity and utilizing crisis standards of care, guidelines used when there is a shortage of resources and care.

Today’s episode is about healthcare allocation in the time of COVID with Britney Wilson, a civil rights attorney with the National Center for Law and Economic Justice. This center, along with three other disability rights organizations, filed a class action complaint in October 2020 against the State of New York.  The lawsuit challenges the New York State Ventilator Allocation Guidelines as discriminatory. The Guidelines allow hospitals to reallocate ventilators from people who use them in the community. Britney will talk about her role in the case and how the case came about, how these existing guidelines are ableist and harm disabled people, and the goals are from the lawsuit. Please note we talked in November 2020 and I included a short update at the end of the episode.

Transcript

[Google doc]     [PDF]

Related Links

 

“NCLEJ Files Lawsuit to Protect Personal Ventilator Users,” October 8, 2020.

Class action complaint, Civil Case No: 1:20-cv-4819, October 7, 2020.

“Lawsuit Filed Challenges New York State Department of Health Guidelines Allowing the Reallocation of Personal Ventilators,” October 9, 2020, National Center for Law and Economic Justice.

“Disability Rights Activists Sue Cuomo over Ventilator Discrimination,” October 9, 2020, Wesley J. Smith, National Review.

“What the Chaos in Hospitals Is Doing to Doctors,”  January/February 2021, Jordan Kisner.

“One Man’s COVID-19 Death Raises The Worst Fears Of Many People With Disabilities,” July 31, 2020, Joseph Shapiro, NPR.

“As Hospitals Fear Being Overwhelmed By COVID-19, Do The Disabled Get The Same Access?” December 14, 2020, Joseph Shapiro, NPR.

Ep 81: Bioethics with Joe Stramondo, July 20, 2020, Disability Visibility podcast.

Ep 50: Disabled Lawyers with Hamza Jaka and Britney Wilson, May 6, 2019, Disability Visibility podcast.

“I’m disabled and need a ventilator to live. Am I expendable during this pandemic?” April 4, 2020, Alice Wong, Vox.

“I will not apologize for my needs,” March 27, 2020, Off-Kilter podcast.

National Center for Law and Economic Justice

Disability Rights New York 

NMD United

Not Dead Yet

 

About

Britney Wilson, Black woman with curly natural, black hair and glasses in a blue chambray suit and white and blue polka dot top standing on crutches in an office.
Britney Wilson, Black woman with curly natural, black hair and glasses in a blue chambray suit and white and blue polka dot top standing on crutches in an office.

 

Civil rights attorney Britney Wilson is a staff attorney at the National Center for Law and Economic Justice in New York.

Twitter: @labelleverite

 

Support Disability Media and Culture

DONATE to the Disability Visibility Project®

 

Credits

Cheryl Green, Audio Producer and Text Transcript

Alice Wong, Writer, Audio Producer, Host

Lateef McLeod, Introduction

Mike Mort, Artwork

Theme Music (used with permission of artist)

Song: “Dance Off”

Artist: Wheelchair Sports Camp

Music

Retro Metro” by Ketsa. (Source: FreeMusicArchive.org. licensed under a Attribution-NonCommercial-NoDerivatives 4.0 International License.)

“Smooth Lovin” by Kevin MacLeod. Link: https://incompetech.filmmusic.io/song/4379-smooth-lovinLicense: http://creativecommons.org/licenses/by/4.0/

Sounds

“VOCODER countdown” by Jack_Master. This work is licensed under the Creative Commons 0 License.

8 Bit Beeping Computer Sounds” by sheepfilms. This work is licensed under the Creative Commons 0 License.

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Ep 91: Disabled Engineers

By Alice Wong / 2020-11-29
Posted in

 

Today’s episode features an interview with Emily Ackerman, a doctoral candidate in chemical engineering at the University of Pittsburgh and a disabled activist. Emily will talk about how she got into chemical engineering, her advice for disabled students who want to be scientists, her experiences last year on campus with a delivery robot, and the importance of accessibility in the design and development of technology.

Transcript

[Google doc]     [PDF]

Related Links

“My Fight With a Sidewalk Robot,” Emily Ackerman, November 19, 2019, CityLab.

“Starship issues new statement after reviewing footage of viral incident on Forbes crosswalk,” Emily Wolfe, October 22, 2019, The Pitt News.

“As businesses adjust to Covid-19, a new take on an old question: Who owns the sidewalks?” Dayna Evans, November 5, 2020, The Counter.

“Disabled scientists excluded from the lab,” Krystal Vasquez, December 8, 2020, Chemistry World.

About

Emily sits among plants in a power wheelchair behind a glass door. She is dimly lit, with long brown hair, a tan turtleneck, and black pants and boots.
Emily sits among plants in a power wheelchair behind a glass door. She is dimly lit, with long brown hair, a tan turtleneck, and black pants and boots.

Emily Ackerman is a doctoral candidate in chemical engineering and a disabled activist. She is particularly invested in achieving equity in STEM education and technology for the disabled community. She lives in Pittsburgh with her cat, Poppy. 

Website: https://www.emilyeackerman.com/

Twitter: @EmilyEAckerman

 

Support Disability Media and Culture

DONATE to the Disability Visibility Project®

 

Credits

Alice Wong, Writer, Audio Producer, Host

Cheryl Green, Text Transcript

Lateef McLeod, Introduction

Mike Mort, Artwork

Theme Music (used with permission of artist)

Song: “Dance Off”

Song: “Hard Out Here for A Gimp”

Album: NO BIG DEAL

Artist: Wheelchair Sports Camp

Music

“Robot” by Razor5 (Robot by Razor5 is licensed under the Creative Commons 0 License).

Sounds

“VOCODER countdown” by Jack_Master. This work is licensed under the Creative Commons 0 License.

8 Bit Beeping Computer Sounds” by sheepfilms. This work is licensed under the Creative Commons 0 License.

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safe on social media

By Anti-Bullying Disability SEN / 2017-07-17
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Victoria answers questions about Albinism

By Anti-Bullying Disability SEN / 2017-06-12
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How to look after yourself? Gemma’s tips.

By Anti-Bullying Disability SEN / 2017-06-08
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Victoria talks about albinism

By Anti-Bullying Disability SEN / 2017-04-30
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